3/9/12-3/17/12
I just about jump out of my skin when the NG pump
alarm sounds in the middle of the night.
The only alarm in my home that would be that loud
would be the smoke/carbon monoxide detector.
I refill the bag which feeds the NG pump
as my heartbeat steadily returns to a normal pace.
Baby T sleeps through the whole process.
I crawl back into bed next to him,
cuddle him thoroughly
then return to slumberland.
Being home is freedom.
Except for the mass amount of appointments we've accumulated.
Baby T's first appointment is with his regular pediatrician,
the day after his hospital discharge.
We're his second confirmed case of botulism in
his ten (plus) year span as a pediatrician.
He's been monitoring Baby T's case closely
and we discuss the plan in moving forward.
His weight will need to be monitored,
Baby T lost about a pound in the hospital.
We're also not to take T around any
younger children or public spaces.
The flu & RSV are spreading like wildfire
and with Baby T in his vulnerable state,
avoiding exposure is recommended.
His NG night feeds should continue
but may need to be adjusted based on his weight gain.
The pediatrician asks us a few questions,
answers ours, and then we're on our way.
Our first few weeks home are spent decompressing.
Baby T spends alot of time nursing as he is weak.
At night he has a little trouble going
to sleep and will only settle when
he lays down on me.
We ease back into our lives
but we continue to revolve around Baby T.
His weight fluctuates so we sometimes have to visit
the doctor two times in one week.
Being confined to our home is the most
difficult order to follow.
Luckily, our family is available to assist us.
A neurologist appointment the week after discharge
brings us back to the hospital we'd become so familiar with.
It is odd to walk past it with Baby T
snuggled against me in the ergo carrier.
Neurology is happy with Baby T's progress and
plan to see him again in two months.
On his ninth day home (St. Patrick's day),
Baby T pulls out his NG tube.
Finally, he is free from tubes.
answers ours, and then we're on our way.
Baby T spends alot of time nursing as he is weak.
At night he has a little trouble going
to sleep and will only settle when
he lays down on me.
We ease back into our lives
but we continue to revolve around Baby T.
His weight fluctuates so we sometimes have to visit
the doctor two times in one week.
Being confined to our home is the most
difficult order to follow.
Luckily, our family is available to assist us.
brings us back to the hospital we'd become so familiar with.
It is odd to walk past it with Baby T
snuggled against me in the ergo carrier.
Neurology is happy with Baby T's progress and
plan to see him again in two months.
On his ninth day home (St. Patrick's day),
Baby T pulls out his NG tube.
Finally, he is free from tubes.
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