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Baby T's Story, Chapter 18- Recovery Pt. 2, free from tubes

3/18/12-4/30/12



Baby T amazes us throughout his recovery!
After pulling his NG tube, his weight was monitored
but luckily we did not need to have the NG reinserted.




At a month and a half after discharge we've
had a total of 13 appointments.
Five appointments are scheduled
within the next month.
T see's a neurologist, Occupational Therapist,
Physical Therapist and his regular Pediatrician.








At 9.5 months:
He is nursing well and is making strides
in his ability to eat solids.
He is sitting again, and has
now mastered rolling.




Last week we got clearance to take Baby T out
though the pediatrician encouraged us
to still exercise caution.








Those who know Baby T well comment
on how he doesn't look like
he was ever sick.
He's as smiley and silly as before.


We're waiting for his care team to deem him "fully recovered".
Until then we're enjoying introducing Baby T
to all the firsts that babies his age enjoy.
He experienced his first "swim" in a pool.
He rode on a cable car and a carousel.
He tasted the first strawberries of the season.
And he was finally reunited with his favorite pastime,
the baby swing.




My breath still catches when I consider
how ill he was and how terrifying
some of those days were.







We're so very thankful to everyone
who has helped us get through what
has been the roughest part of our lives.







If your baby has IB we sincerely wish that

Baby T's story gives you

hope for recovery.

We hope that eventually you find peace.






Thank you.













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