Tuesday 3/6/12
A restless night is met with even better news in the morning.
Baby T is moved from a high flow canula to a regular one.
He is breathing well so less assistance is expected.
The footwork to move us out of the PICU is underway.
His NJ tube is pulled back to become an NG tube.
His compromised airway made the NJ (goes further into his intestine)
necessary but now it was time to see if he could handle the NG.
An occupational therapist is added to T's scheduled visitors.
She evaluates his swallow as he takes some solid food.
He does well so she says we can work on breastfeeding soon.
This news couldn't be more welcome.
Pumping, while completely necessary for maintaining my supply, is WORK.
I've gained a new sympathy for moms who need to maintain a long-term relationship with a pump.
Baby T also gets his Arterial line removed.
This free's up his left arm which has been
tied up by lines ever since we arrived.
Losing this line means stability,
they no longer need to do blood labs!
This free's up his left arm which has been
tied up by lines ever since we arrived.
Losing this line means stability,
they no longer need to do blood labs!
Soon, we get approval to leave the PICU.
After 2 long weeks Baby T is well enough to move to peds (literally across the hall).
The massive amount of stuff we've accumulated is packed up.
I miss the nurses and doctors but know that I'll never ever wish to return there.
That morning we overheard a mother being told that her child's "options" are now severely limited.
I'm reminded once more of how lucky we are through this entire ordeal.
Peds is small.
Our space is about 25 % smaller and we're wedged between two other patients.
No security is necessary to enter our room which means our neighbors
can invite their entire extended families into the room (and they do!).
The nurses & RT's only need to visit every 4 hours now.
Baby T is in good spirits and handling his NG transition well.
They try bolus feeds to see if he tolerates a larger amount in a shorter timeframe and he does great.
I'm anxious for rounds the next morning as one of our neighbors (a 3 yr old) has white-coat syndrome and screams through her CPT, waking Baby T & I every few hours through the night.
Click to continue reading Baby T's Story, Chapter 15
I'm anxious for rounds the next morning as one of our neighbors (a 3 yr old) has white-coat syndrome and screams through her CPT, waking Baby T & I every few hours through the night.
Click to continue reading Baby T's Story, Chapter 15
No comments:
Post a Comment