Saturday- Sunday, 3/3/12-3/4/12
The last of the long term patients has left.
We have now been in this PICU longer than any other patient. I dream of the day when we can leave.
Everyday we see the excited patient families leave along with the anxious families
who are new, tender and quite traumatized.
The PICU itself is bi-polar; Calm one minute and then manic the next.
We’re humbled by the conversations that we have with other families
and realize despite the ongoing fear, we are lucky.
Many of the admits have a long history of PICU visits and other hospitalizations
and will continue to be frequent inhabitants.
Many of them have terminal illnesses or have been sick for the majority of their lives.
Our stop here is temporary and YES it is awful,
but it could be so much worse...
Baby T is gaining strength once more. It is nice to see his feistyness return.
We add a mustache to his vent tape for morning rounds suggesting
that T has been here so long that he’s growing facial hair. The staff enjoyed the laugh.
His lung continues to open so CPAP sprints are planned for the
entire day Sunday with the goal of extubating again on Monday.
This time they want to test his strength by decreasing the support in "sprints"
and monitoring his reaction.
He does well on his sprints so the NPO orders are in.
IB Dad & I anxiously await another extubation,
set for 3/5.
This time feels different.
We really feel like he is ready.
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