Tuesday 2/28/12
Baby T is still struggling on the CPAP but the blood gases are returning
within the normal realm so the day continues.
The dr’s are wary of him needing to be intubated emergently, and wish to avoid it.
We get to hold him more.
He is difficult to hold with the various tubes and his complete lack of tone
(imagine holding a 25 lb newborn!) but it feels good to feel his weight again.
The CPAP settings have been adjusted so the machine isn't constantly going off.
We encourage him to continue being a strong little fighter.
He is very tired so PT is quick.
Neurology comes by and they feel he is struggling off of the ventilator
but agree with the pediatrician's "wait and see" approach.
In the evening they are able to resume NJ feeds.
At this point he has been only receiving IV fluids for nutrition for 24 hours.
I'm hoping that getting some food in his tummy might settle him as he is increasingly agitated.
They are wary of sedating him since it may cause respiratory problems.
The next 24 hours are draining, a constant touch and go.
It is hard to see him weak once more, especially since 48 hours ago he seemed stronger.
What caused the disease? I need to know if Karo Syrup can be a cause for sure!
ReplyDeleteRey's Fan, I haven't seen any solid research on Karo Syrup being linked to IB. Ask your pediatrician and see www.infantbotulism.org for more information.
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