Wednesday 2/29/12
After an uneventful night, all seems well.
Everyone encourages us that the likelihood of Baby T being
intubated decreases as more time passes.
I leave for home in the morning while IB Dad stays with Baby T.
As I am getting our middle child settled for her nap,
I text IB Dad to check and see how T is doing.
IB Dad calls me back immediately and is distraught.
He explains that Baby T was doing fine, but then had started to destat
(his respiratory rate/oxygen monitors were indicating that he was heading for respiratory failure).
(his respiratory rate/oxygen monitors were indicating that he was heading for respiratory failure).
Doctors and nurses rushed in and they worked to get T back into normal range.
They couldn’t so he is being intubated once more.
I rush back to the hospital.
When later getting the details of this event IB Dad described how scary it was to see Baby T in good shape one minute but then all of a sudden he looked "out of it".
His eyes began rolling around and his palor totally changed.
His second intubation wasn’t as smooth.
I join IB Dad in the hallway outside and we wait a very long time.
When I see Baby T again he has another tube in the other nostril
which is draining his stomach contents. He has another machine to add breathing assistance
and more closely monitor his vent settings.
Seeing him back on the vent is terrible.
We thought that his progress was a one way street,
but he seemed to have U-turned and retraced his steps.
An xray revealed the cause.
His right lung has collapsed.
RT’s begin vigorous CPT and breathing treatments to try and open it.
Xrays become a regular part of his schedule now.
No one was talking much about his prognosis so we were very anxious the rest of the evening
until a pediatrician came by and discussed with us what they believed had happened.
Basically he was too weak and they extubated too soon.
The doctor’s had felt he was ready when he really was not.
Breathing took too much effort thus the decreased movement in his limbs.
His full recovery is still expected and isn't necessarily in jeopardy
but he now had more hurdles to cross.
IB Dad and I are devestated but do try to remain hopeful.
Baby T continues to have periods of struggle through the night as adjustments to the vent are made.
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